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12 months and no posting… is this blog going to end? Maybe…people might have forgotten about its existence…

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Today, the caregivers celebrated teacher’s day for the volunteers … a day of massive amount of food and laughter … I really appreciate what the caregivers do for us … volunteering is never about getting something in return … although in many many ways, the things that trainees teach us are often more than what we teach them …

This blog has many valuable information and I hope it can be passed on …

In 2007, it was the blog era …

In 2011, is it the facebook era now ?

-Fan Han-

“Healthy Boby, Healthy Minds”

So a few cats from our group went to this Sharing Day. Which is not too bad. The first thing they did was to break up everyone there into groups to mix around, so no one actually knew how many people from each project group went for the Sharing Day. (If anyone askes, about 10-15 BKTG vols. went down – we’re damn supportive of MYG events, right?)

The theme of this Sharing Day is mainly on the trainees’ health, which is important enough to share with everyone, especially new (and newer) volunteers. More experienced volunteers please bear with me for a while. As usual, I fall asleep within 30 seconds of any seminar, so bear with the vague notes.

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Basically, the health of every ID can be broken down into 3 main areas:

  1. Physical well-being
  2. Nutritional well-being
  3. Mental well-being

It is important for volunteers to look at all 3 aspects when accessing a trainee’s health condition.

Physical Well-being

  • inherited/ acquired birth defects
    (most of the trainees have down syndrome, and most down syndrome patients tend to develop heart problems)
  • medical history/ profile
  • general immunity
  • sensory impairment
    (down syndrome patients also have weaker immunity systems. Their senses, and sense of environment, also drops over time)
  • mobility vs flexibility
    (ability to walk and run vs how wel they can stretch their muscles)
  • dental care

Nutritional Well-being

  • poor ingestion vs digestion
    (note: we all know what digestion is, but ingestion – the act of actually consuming the food – is not the same thing. food needs to be properly ingested – as in, eaten properly, chewed properly, and not swallowed whole, for example – in order to be healthy to trainees)
  • small appetitie vs compulsive eating
  • malnutrition vs obesity
  • restricted diet

Mental Well-being

  • general emotions management
  • under medication influence
  • epilepsy
  • psychiatric disorder

most trainees suffer from some kind of emotional distress – given their condition, they are unable to express themselves very well when they feel anger, fear, sadness and even happiness. Over time, these emotions might accumulate into rather drastic and extreme actions.

(something new)

For trainees with ASD (Autism), they have this symptom of ‘recurring memory’ – they will have a flashback of a certain point in their past at random and this will also affect their mood.

For ADHD, medication leads to halluciation which in turn affects their mood again.

Autism and ADHD are 2 different things, but it’s not uncommon to see combinations of ASD + ADHD, Down Syndrome + ADHD, or any other type of combinations.

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the next acitivity is what some of the other projects do for their trainees (just a short list as I didn’t manage to capture much in my notes)

Some projects group their training into 4 main catergories

  • social equitte
  • arts
  • sports
  • money concept

and rotate these concepts around throughout the year.

In addition, other acitivities they engage in include:

  • teaching social behavior through video clips
  • baking sessions
  • singing and dancing sessions
  • rhythm-themed games

the rest of sharing day is about practising bocce and floor hockey. we’ll get a chance to try it out during PE sometimes.

that’s about it?

Realised that having went for that MYG Learning Day (talk on sexuality) someone should probably write something on it also.  It has been ages since I last wrote anything intelligent (actually, I’m not sure if I ever wrote intelligent stuff before, but nvm) so please bear with the language and all.

Another thing to take note of is this: the venue is the same school which I graduated from, in the very same classroom which i had a few modules. So you can imagine me sitting at a desk with someone giving a lesson in front, it’s REALLY like going back to class all over again. Therefore, the natural thing for me is to go into ‘sleep mode’ about 30 secs in. Hence the lack of detail.

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The first part of the lesson (the first 30 secs which I was still awake) talked about how our intellectualy disabled trainees ae also able to feel emotions and sexual desires and sometimes display actions that are not very appropriate.

We can relate to this part as even I already know and seen some trainees’ actions going out of line, despite my relatively short time here (and I’ve only taken care of grp C trainees, so rightly or wrongly, I’m using the grp C trainees’ functionality to represent the functionality of BK’s trainees as a whole). However that is almost all tt is relevant to us (read: and then I fell asleep).

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The remainder of the session deals with higher functioning trainees, who are of a totally different nature from what we are used to dealing with. They are talking about trainees who are capable of having at least a functional conversation with you, trainees who are able to tell you that they are interested in someone in the opposite gender; who are able to listen to your reasoning that irresponsible sexual behavior is bad; who are able to surf the internet for porn and in one story, even get married.

It’s eye-opening for sure, but ultimately the ways to deal with the trainees (eg. teaching them the correct names for the various body parts, telling them about STDs) are generally not applicable to our project.

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I mentioned that part about teaching traines the correct name for body parts ie. call te private body by its proper english name instead of slangs like ‘bird’ or whatever. Apparantly, one important reason is that should trainees themselves ever become victims of sexual hararessment, they can tell the police clearly exactly where they are violated. This takes up another core of the session: highr functioning trainees are more prone to falling victim to sexual criminals. A stranger can offer them simple things like a coke or a burger first and somehow lead them to bed next. This could be due to the trainees feeling obligated to return the favour of that burger or coke (and not knowing where to draw the line), or maybe the trainees just want to make new friends.

Strategies to solve this problem include teaching trainees about what appropriate actions are with different people. (You can ‘shake hand’ with a ‘volunteer/teacher’, you can ‘high-five’ a ‘friend’, you can ‘hug’ your ‘parents’, you should ‘ignore’ ‘strangers’ and NEVER, EVER allow ANYONE to touch you – except for ‘parents’)

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I may have simplified things a little too much here, but as you might be able to tell, I felt tt a lot of things are not relevant nor applicable to us. That being said, there are still some interesting things to learn. Like how in other countries, some parents take their ID son to patronise sex workers to satisfy the son’s urges. Or how professional working people in the weekdays gather together and provide sexual services to the IDs in the weekends. (damn, i feel gross just typing that last sentence. it is one thing to know that there are cultures vastly different from ours. it’s another thing entirely to know – and accept – how far these differences can be)

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Another thing I am rather ashamed to admit is this. when i first joined BK, and someone was telling me that BK has the lower-functioning trainees, I remember thinking: “sian. that means more troublesome.” And over the sessions i do feel quite frustrated when i ask for simple things like “wash your plate”, “go for a walk” and i’m not sure if the trainees even understand what i say. Taking care of higher functioning trainees, I reckon, would have made the life of a volunteer so much easier.

Now i realise it’s not true. I learn that trainees with higher functionality just presents a more complex series of problems. I mean, the absolute most important question I can ask about the trainees I usually handle now is “do they know how to go to / use the toilet themselves?” That cannot be compared to, say, a higher functioning trainee coming and saying that he/she has been sexually violated or raped. Totally different nature. And this realisation would probably be the greatest take-away from this Learning Day.

-chenyang

PS. MAY edit and upload the PPT slides used for the session when able to find time

Sharing Day

Did anyone attend the sharing day? Anything you would like to share?

I would love to see more senior volunteers being around to share… i thought that’s the purpose? 1-2 newer volunteers commenting maybe next year won’t be turning up…. sigh!

To the visitors who came for our Open House ..

Thanks for taking time off to visit us. We hope you have a better idea of our trainees and activities. For those who have put down your contacts, we’ll be getting in touch shortly to follow up on how you would like to volunteer with us. We would also be seeking your feedback on what can be improved.

Pls feel free to come down for our regular class on 30 May, 3-5.30pm. Kindly drop us an email at bktg1983@icqmail.com if you are coming.

We have opened our “house” and hearts, hope you will too =)

- Jianyun

Thanks to those who have given views.

The intent for me showing the transcript of the sms was more to share on some thoughts that struck me… just for your info, when I post these onto the blog, I were still smsing with the other party… I shall remain anonymous over this and will not add on to what was discussed over the sms. A couple of you already know who we are.

It has been donkey years since I completed primary education, so I am quite shocking to hear that punishment such as asking student to face the wall is no longer allow and consider degrading! I remembered when I was a child, teacher could throw chalk, book at us if we misbehave. Made us stand on chair, stand outside the classroom as other forms of punishment… I wonder what types of punishment are considered appropriate and effective nowadays.

Anyway, I just was want to say, as volunteers we will need to stay relevant to concurrent context in what we are doing – be it in the objectives we set for our trainees, the activities we are engaging them in or even when we need to make some enforcement to correct their behaviour. Bro, thanks for clarifying on the current situation in mainstream school!

Secondary, as volunteers, we just need to be vigilant in whatever we are doing. Even though our intent might be good, if we are not careful in our execution, we might be misinterpreted.

That’s all…

PS: Btw, Weizhi was never punished when he was with us…. because he never misbehave…. He has autism.

Punishment

I received an sms today

“Hi. Just curious, does bktg carry out any form of punishment on trainees who exhibit inappropriate behaviours or simply misbehave like in the case of weizhi (the one who likes to run around?)

My reply
“Punishment if scolding doesn’t work will be in e form of slapping the hands to indicate disapproval of actions”

I got the follow response
“What about sending a trainee to face the wall (i mean literally) because she exhibits the habit of sniffing other people’s hands. Mind u, she’s a young adult and of “fairly high functionality”. Is such form of punishment app?

My reply
“That’s one possibility, wat i had mentioned in my previous sms is usually wat we do. In general, they are special ppl, so various forms of punishment done in mainstream school could be use appropriately – if trainees are educated these are consequences of misbehaviour”

I got the response
“How can such a degrading form of punishment be acceptable especially when the recipient is an adult albeit with id and the punishment is carried out by volunteers in a myg setting. How can this be acceptable?

I responded
“I am trying to generalise the possible punishment. Main thing is they understand wat is it for… as u seen when u’re with us, e most we do is scolding, slapping hands”

His reply
“I understand bktg form of discipline and i’m fine with the rationale behind the intention. But my question is how can a degrading form of punishment like facing the wall be even considered acceptable and being condoned in a myg setting? Where’s the basic human dignity? Heck, even a normal child may fight against such degrading form of punishment. In the context of an id adult who couldn’t fight 4 her rights, shouldn’t we be even more mindful and protective against such acts on her”

I gave a quick response
“definition of degrading form of punishment varies to individuals”

He smsed
“If so, then i reckon definition of spousal abuse varies to individuals too. Let’s keep quiet and not do anything about it. Is that ur point?”

I replied
“The context varies over time. When i was a child, punishment like being told to stand on a chair, face the wall… were not being considered as degrading, violating human dignity, unlike now. So wat form of punishment is acceptable now? Ppl know their rights, or are ppl abusing their rights for their own good? I can’t answer these questions”

He said
“But wr r talking about adults with id who couldn’t fight 4 their rights. What gives those volunteers the right to carry out such punishment on their trainees? My question to u is simple and i need to know. What would u have done if u were there?

I have given him my replies… What would you have done?

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